16 yo Jim from Yerevan was diagnosed with Genetic progressive neuromuscular disease (Spinal Muscular Atrophy Type 3), confirmed by molecular genetic analysis (7th exon deletion in the SMN1 gene) when he was 5 yo. The genetic illness is not curable, but it’s effectively treatable by lifelong medication, which is very expensive. So far the family had no financial means to start medication treatments. Unfortunately, over the last year Jim’s muscles drastically deteriorated, he can walk only with aid and is mostly relying on a wheelchair to move. He needs to urgently start medication with Evrysdi® (risdiplam) that costs about 15000 Eur per month, thus we’re starting this fundraiser to help his family provide him with the medication he needs to stay mobile.
Jim has been a talented artist and painter since early childhood and has already participated in various exhibitions, in the photo it’s Jim with his artworks. He creates beautiful paintings, digital art, animations, sculptures, and even whimsical creations like magic wands. SMA is a rare and progressing genetic condition that affects muscle strength and movement. Although Jim remains passionate about his art, SMA is gradually taking away his independence and mobility.
Please, make a contribution for Jim’s treatment, any amount makes a difference! Alternative ways to donate:
In Europe:
Deutsche Skatbank: Kamurdsch-Brücke e.V.
DE81 8306 5408 0005 4458 17
Purpose: Jim’s SMA treatment; + only for taxpayers in Germany: your Email & address for Spendenbescheinigung
Worldwide: PayPal @ kamurdsch.bruecke@gmail.com
Purpose: Jim’s SMA treatment
If your employer/corporation uses the corporate giving portal Benevity: https://causes.benevity.org/projects/629890 (cause: Kamurdsch-Bruecke e.V.)
In Armenia: Օգնության Կամուրջ Հիմնադրամ
Արդշինբանկ․ 2471707439720000 AMD
Նպատակ․ Ջիմի բուժման համար
